UnconVENTional Aid: Helping Nick Dupree – Part II
I thought I would post an update to my first post, UnconVENTional Aid: Helping Nick Dupree, Social Networking Style. Many people asked about simply evacuating Nick. Evacuating a person with a disability, isn’t as easy as evacuating an able-bodied person not attached to ventilators, and other medical equipment. In fact, the Red Cross told me,...
UnconVENTional Aid: Helping Nick Dupree, Social Networking Style
As you all know, being the creative type that I am, I love do it yourself projects… however, I found myself in the middle of a rather unusual project, which involved a lot of creative “thinking outside of the box” and it was more then just a do-it-yourself. It was more of a “do it...
Products to Benefit Mootha Lab for Mitochondrial Research + GIVEAWAY and Awareness Freebies!
It’s that time of year again! Mitochondrial Disease Awareness Week starts tomorrow! I’ve been busy re-stocking my etsy shop with awareness products! I’ve often been asked, Which Mitochondrial Disease organization do you support?” as though I have to “choose one.” There are multiple non-profit organizations out there which help mito patients such as MitoAction, UMDF,...
My Top 10 Tupperware Products for People with Disabilities
It was the first week of January when a friend of mine Facebook messaged me asking me if I wanted to hold an online Tupperware party. I figured, why not… I went to Tupperware’s website, poked around while I was chatting with her, then asked if I could hold a “real” Tupperware party. You...
1000 Paper Cranes for Leslie’s Wish
Since a lot of you LOVE D.I.Y projects, I thought I’d involve my readers in a DIY project to help someone else’s wish come true: Leslie (Whitt) Williams is a 24 year old from Ohio who is quickly losing her battle with mitochondrial disease. I asked her older sister, Megan, to tell us a bit...
My Rare Disease Story: Living with Mitochondrial Myopathy
I joined the The Global Gene Project for a BLOG HOP to help promote awareness for the upcoming Rare Disease Day on February 29th, 2012by sharing my story about living with mitochondrial myopathy. In the United States, a disease is considered rare if it is believed to affect fewer than 200,000 Americans. What does the...
Babywearing from a Wheelchair
Since it’s International Babywearing Week, I thought I’d blog about the adventures of babywearing at our house! Sophie, 15 months wearing Bitty Baby in her Beco Mini “Babywearing” simply means holding or carrying a baby or young child using a cloth baby carrier. Holding babies is natural and universal; baby carriers make it easier and...
MEDIA STORY: tiny studio, gigantic results
Little Free Radical was featured in the local newspaper this week! Here is the article: Tiny studio, gigantic results North Revere resident finds success — and strength — in her home-based sewing business Photo Credit: Ana Paula Massoni of Massoni Photography By Seth Daniel Revere Journal September 28. 2011 When Crystal Evans surveyed the challenges...
GIVEAWAY: mitochondrial disease awareness week
Since Invisible Illness Awareness Week was last week (September 12 – 18) and this week is Global Mitochondrial Disease Awareness Week (September 18-24), I thought I would write a post explaining how Mitochondrial Disease affects me personally. So here goes: I’m a 30 year old, living with childhood-onset, mitochondrial myopathy – one of the 42...
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