mitochondrial disease
UnconVENTional Aid: Helping Nick Dupree - Part II

UnconVENTional Aid: Helping Nick Dupree – Part II

I thought I would post an update to my first post, UnconVENTional Aid: Helping Nick Dupree, Social Networking Style. Many people asked about simply evacuating Nick. Evacuating a person with a disability, isn’t as easy as evacuating an able-bodied person not attached to ventilators, and other medical equipment. In fact, the Red Cross told me,...
UnconVENTional Aid: Helping Nick Dupree, Social Networking Style

UnconVENTional Aid: Helping Nick Dupree, Social Networking Style

As you all know, being the creative type that I am, I love do it yourself projects… however, I found myself in the middle of a rather unusual project, which involved a lot of creative “thinking outside of the box” and it was more then just a do-it-yourself. It was more of a “do it...
Products to Benefit Mootha Lab for Mitochondrial Research + GIVEAWAY and Awareness Freebies!

Products to Benefit Mootha Lab for Mitochondrial Research + GIVEAWAY and Awareness Freebies!

It’s that time of year again! Mitochondrial Disease Awareness Week  starts tomorrow! I’ve been busy re-stocking my etsy shop with awareness products! I’ve often been asked, Which Mitochondrial Disease organization do you support?” as though I have to “choose one.” There are multiple non-profit organizations out there which help mito patients such as MitoAction, UMDF,...
My Top 10 Tupperware Products for People with Disabilities

My Top 10 Tupperware Products for People with Disabilities

  It was the first week of January when  a friend of mine Facebook messaged me asking me if I wanted to hold an online Tupperware party.  I figured, why not… I went to Tupperware’s website, poked around while I was chatting with her, then asked if I could hold a “real” Tupperware party. You...
1000 Paper Cranes for Leslie's Wish

1000 Paper Cranes for Leslie’s Wish

Since a lot of you LOVE D.I.Y projects, I thought I’d involve my readers in a DIY project to help someone else’s wish come true: Leslie (Whitt) Williams is a 24 year old from Ohio who is quickly losing her battle with mitochondrial disease. I asked her older sister, Megan, to tell us a bit...
My Rare Disease Story: Living with Mitochondrial Myopathy

My Rare Disease Story: Living with Mitochondrial Myopathy

I joined the The Global Gene Project for a BLOG HOP to help promote awareness for the upcoming Rare Disease Day on February 29th, 2012by sharing my story about living with mitochondrial myopathy.  In the United States, a disease is considered rare if it is believed to affect fewer than 200,000 Americans. What does the...
Babywearing from a Wheelchair

Babywearing from a Wheelchair

Since it’s International Babywearing Week, I thought I’d blog about the adventures of babywearing at our house! Sophie, 15 months wearing Bitty Baby in her Beco Mini “Babywearing” simply means holding or carrying a baby or young child using a cloth baby carrier. Holding babies is natural and universal; baby carriers make it easier and...
MEDIA STORY: tiny studio, gigantic results

MEDIA STORY: tiny studio, gigantic results

Little Free Radical was featured in the local newspaper this week! Here is the article: Tiny studio, gigantic results North Revere resident finds success — and strength — in her home-based sewing business Photo Credit: Ana Paula Massoni of Massoni Photography By Seth Daniel Revere Journal September 28. 2011 When Crystal Evans surveyed the challenges...
GIVEAWAY: mitochondrial disease awareness week

GIVEAWAY: mitochondrial disease awareness week

Since Invisible Illness Awareness Week was last week (September 12 – 18) and this week is Global Mitochondrial Disease Awareness Week (September 18-24), I thought I would write a post explaining how Mitochondrial Disease affects me personally. So here goes: I’m a 30 year old, living with childhood-onset, mitochondrial myopathy – one of the 42...